As parents, one of the hardest things is watching our children suffer, especially when it’s from something preventable or treatable. Sickle cell disease (SCD) is one of those conditions that affects far too many children, especially in Nigeria. But thanks to some recent developments help is not just on the way.
What Just Happened? The $1 Test That Could Save Lives
The Clinton Health Access Initiative (CHAI) recently announced a major breakthrough. In partnership with Silver Lake Research Corporation, they’re making the HemoTypeSC test available for just $1 per test. That’s one dollar to screen newborns and young children for sickle cell disease quickly and accurately.
This matters because Nigeria has the highest burden of SCD in the world. Every year, over 150,000 babies are born with sickle cell in Nigeria, and sadly, many do not live past their fifth birthday due to lack of early diagnosis and care.
Every year, over 150,000 babies are born with sickle cell in Nigeria Share on X
This affordable test can now be used in more hospitals and clinics, especially in rural areas. It allows babies to be screened at birth, which means treatment can start earlier and families can make informed decisions about their child’s health.
Why Early Detection Matters
When sickle cell is diagnosed early, treatment can begin right away. One of the most effective treatments is a medication called hydroxyurea. It reduces the number of pain episodes and hospital visits for children with SCD. CHAI has also worked with Qilu Pharmaceutical to reduce the cost of this drug, making it more accessible for families who need it most.
In simple terms: early testing plus affordable treatment means healthier children and fewer emergency hospital runs.
Spotlight on Nigeria: The Global Congress on Sickle Cell
This update came just in time for the 5th Global Congress on Sickle Cell Disease, held in Abuja, Nigeria from June 3 to 6, 2025. Health experts, doctors, researchers, parents and patient advocates gathered under one theme: “Working together to reduce the burden of sickle cell disease: Leaving no one behind.”
The event highlighted Nigeria’s leadership role in tackling SCD and gave space for conversations around policy, access to care, education, and the importance of supporting families raising children with sickle cell.
What This Means for You as a Parent
If you are a parent, especially with a family history of sickle cell, here are a few things you can do:
- Ask your doctor about newborn screening. If your child hasn’t been tested, it’s not too late to ask for it.
- Learn about treatment options like hydroxyurea and ask your healthcare provider what’s available at your local clinic or hospital.
- Join local support networks. Organisations like the Sickle Cell Support Society of Nigeria (SCSSN) offer great resources and peer support.
- Talk to your children about sickle cell in a way they can understand. Help them feel confident and supported in managing their health.
A Brighter Future is Possible
For too long, sickle cell disease has been under the radar. But thanks to new partnerships, more affordable tools, and the support of a global community, things are changing for the better.
At LagosMums, we believe that every child deserves a healthy start and every parent deserves access to the right information. If you or someone you know is raising a child with sickle cell, please know that you are not alone and that support is available.
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